Healthcare

1. Self-Empowerment Fact Sheet
created by the Youth Advisory Committee for the National Council on Disability.
Self-Empowerment Fact Sheet – Microsoft Word
Self-Empowerment Fact Sheet – Adobe PDF

2. National Consortium on Leadership and Disability for Youth

3. The Riot Newsletter
An initiative of the Self-Advocate Leadership Network at The Human Services Research Institute
Read The Riot Online
or download the latest version here
The Riot – issue 12 – Adobe PDF

4. National Collaborative on Workforce and Disability (NCWD)

5. Transition Health Care Tips
Transition Health Care Tips – Microsoft Word

6. Life Beyond College:  Welcome to the Real World by Gina Semenza
A resource provided by the World Institute on Disability
Please visit the World Institute on Disability website to read Life Beyond College:  Welcome to the Real World

7. YIELD the Power Program (ODEP Demonstration Program)
A resource brought to you by Access Living of Chicago
Please visit the YIELD the Power Program website to view program materials

8. Canine Companions for Independence

9. Disability Mentoring Day:  Career Development for the 21st Century

10. United States Department of Health and Human Services

11. Centers for Medicaid and Medicare Services

12. Pediatric Brain and Spinal Cord Injury Program

13. Promoting Health Care Transitions for Adolescents with Special Health Care Needs and Disabilities
A book Edited by Cecily L. Betz, Ph.D., RN, FAAN, & Wendy M. Nehring, Ph.D., RN, FAAN
Please visit the Brookes Publishing website to learn more about this book

The next few  resources from Kids As Self Advocates. These guides and tipsheets are a part of 60+ document resource section they have on their website. To find other resources by them, visit fvkasa.org

14. KASA’s Guide on Surviving a Doctor’s Appointment
Ever go to the doctor alone? Do you know what you will need in order to do that? Along the road to independence comes the time when you will want to take charge of your health care. See the first steps here.

15. KASA’s Guide on Preparing for a Doctor’s Appointment
Going to a doctor’s appointment can be stressful. It helps to prepare for the appointment and here are some tips written by a young adult on information that you need to get together before you go to the appointment.

16. KASA’s Guide on Communicating With Your Doctor
Maia, now in college, shares her strategy for talking to her doctor when she started to take over management of her health care.

17.KASA’s Guide on Your Rights at the Doctor’s Office
Doctor appointments to manage your health care should be done in partnership with the doctor.  Sometimes it can be hard to know what your rights are and how to advocate for those rights.  Read about it here.

18. KASA’s Guide on Keeping Track of Your Health Care Information
Keeping track of your health care information can be difficult.  It can be tough to figure out a system that works for you.  Here are some tips on keeping track of your health care information.

19. KASA’s Guide on Keeping a Health Diary
Maia, a college student, finds that keeping a health diary helps her be independent and take over her health care. She uses the diary to track her health to best inform her doctors, her family and herself.

20. KASA’s Guide on Contracting with Your Doctor
Maia, a senior in high school, has a lot of experience with doctors and hospitals. As a result, she has developed a unique agreement with her health care provider, a contract! In this fact sheet, she shares her advice for creating one with your doctor.

21. KASA’s Guide on Transition to Adulthood
The transition from childhood to adulthood can be difficult. When you are a child you can depend on your parents to help you make hard decisions, but when you become an adult you are expected to be able to make decisions on your own.

22. KASA’s Guide on Switching to an Adult Doctor
Is it time for you to switch from a pediatrician to an ‘adult’ doctor? Read this quick tip sheet for ideas to consider when planning your switch.